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Your story gives hope...
At The Autism Site, we hope to bring people whose lives have been touched by autism spectrum disorders together to support one another. This is a safe place to share your story with people who understand, and to share hope for all those affected by autism. Your story might be about yourself or your child, someone you've loved your whole life, or someone you met only briefly. With one in every 88 children on the spectrum, the number of people affected by autism is growing every day.
Your story has the potential to bring hope, love, and empathy to others whose lives have been touched by autism. A kind word can mean the world.
· Please do not post solicitations of any kind. Any story containing a solicitation will be removed.
I am an 11 year old special education student who is on the autism spectrum. My mom found me in a Russian orphanage. I was alone, sick, starving and emaciated. My head had been shaved due to lice. The doctors told her that I was special needs and I may never be able to walk or even talk. She adopted me anyway because she loved me. She said the most heart breaking thing she ever saw in her life was "snack" time at the orphanage. She said that the ladies broke off small pieces of hard bread and gave them to each toddler to eat. The bigger male children ate their bread quickly and went after the other children's bread. They were able to take away the other much smaller children's bread and eat it themselves. These other kids were left sobbing and hungry. My mom said that, when I received my bread, I clutched it in my fist and curled up in the fetal position with the bread hidden under my body. When the bigger boys tried to take it away from me, they could not get to it. No matter how hard they pushed, pulled and kicked me, I would not let go of my food. After a while, they gave up and moved on to the next child. I have fought to survive and make a difference my whole life. I am active in gymnastics, dance, swim team and cheer team. I am also a pageant queen and have raised over $5,000 to help other children and families.
My only goal in life that I have not yet reached is to compete for Team USA at the Special Olympics World Games in gymnastics and swimming. Someday, I will be on that team. I will keep training daily and not give up. When I grow up, I want to start my own charitable foundation to help others. I realize that other people's lives sometimes depend upon who is willing to help them. My life matters and I want to help others.
As a small child, I would get lost in music to the point I wouldn’t respond to my own name. My parents knew I was a little different, but they didn’t know what it was. When started kindergarten, I would hang around the teachers more than I would children my own age. Without an official diagnosis, my parents did things to encourage me to try new things. I was given piano lessons and encouraged to draw. My parents were always very supportive of my special interests.
I wouldn’t officially be diagnosed on the autism spectrum until I was an adult. By this time, I had already graduated high school and college with honors and without any special learning services or IEP. Before being diagnosed, I had started my own business to produce the films and books I wanted to write. Without any outside financing, I had written, directed, produced, starred in, and edited my own TV show and movies. My last feature film was shown in Mumbai, India, where I won Best Experimental. I have also gotten my filmography on IMDB.
As an independent artist, I will sometimes get a negative review for being different. I don’t mind being different, especially when my fans are comparing me to J.D. Salinger or talking about how my illustrations for children's books belong in a museum for children's book art.. The joy for me as an artist with autism is when I have somebody tell me how important my work was to them. I have had high school students do class projects on my books and students in college write their final papers on my works. I get fan mail from people around the world telling me they wished they would have read my books earlier in life. It would have saved them a lot of heartache.
My goal in life now is to become an advocate for individuals with autism and to increase awareness about it in our society. I want to create a positive image of what autism can be.
Meet Lorilea...A sweet young lady with tons of creativity and imagination. She loves to draw and write short stories. She has a beautiful voice and is a wonderful singer. She also enjoys Karate. It helps with her self-confidence and strength to do better and try harder.
Lorilea was diagnosed with Autisim Spectrum Disorder (ASD) with PDD and ADHD at the age of 3. Before her diagnosis she displayed behaviors of a typical toddler and was learning to speak Spanish at an early age and then one day something changed as if a switch was flipped. Up until her diagnosis I was not aware of the symptoms of Autism. All I knew was that my sweet angel couldn't speak to me and tell me how she felt. I witnessed her bang her head against a wall in frustration because she couldn't tell me what was wrong or what I could do to help her. I was a young mother and in the beginning was in complete denial. But once Lorilea was enrolled in school her father and I were able to work with her teachers on how to help her cope with her meltdowns. She mimicked movie phrases as a means of communication with us.
As time went on Lorilea was also diagnosed with separation anxiety. But she continued to work hard and has showed great progress from the help at her school, her doctors and her family. In the fall she will begin 8th grade and has been able to move away from some of her therapy classes. I am hoping by high school she will begin inclusion classes. She continues to surprise me and I'm excited to see what the future holds for her.
But there is nothing more certain than this wonderful girl has my heart forever.
Kelsey is a 4th grade special education student who has been diagnosed with autism. She has not let that diagnosis define or limit her. She is active with gymnastics, dance, swimming, cheerleading and pageants. In fact, during the past several months, she has won over 30 pageants and volunteered for more than 100 service hours on related community service projects. Earlier this week, she was invited to make a special presentation for the special education students enrolled at Bonaire Elementary School. The students were excused from their regular class to come to a central location and participate.
Kelsey's pageant platform is that "Special Needs Means Special Abilities" - individuals with disabilities can make a difference and have a positive impact on other people's lives. During her motivational presentation, she showed them her display board, some of her pageant sashes and one of her pageant trophies. She encouraged them to reach for the stars and pursue their dreams. She also explained the importance of making a difference in your community. It was a great day sharing information about a platform that means so much to Kelsey.
During the past three months alone, she has been a featured speaker at a regional autism walk advocacy event; provided the featured entertainment (tap dancing) at a local pageant for developmentally disabled middle and high school girls; coordinated a community service project addressing animal cruelty prevention by collecting almost 250 pounds of dog food for a local humane society; volunteered at her mother's Pre-Kindergarten Sunday School class; and along with several other local pageant title holders, visited a local personal care home to play bingo with the residents and distribute gifts. Kelsey wants to start her own charitable foundation someday. I am very proud of my little pageant queen.
People told us that our son was just being a boy, that he’d outgrow his immaturity. I asked, “If he’s going to outgrow it, why is it getting progressively worse?” No one knew what to do. Hugs more like body slams. Homework & mealtimes were a constant struggle. Notes from teachers & principal about his behavior. He started describing himself as “stupid” and his self-esteem plummeted. No one had a solution that worked. I brought home books to get him interested in anything besides Minecraft.
Then I started working as Assistant Director at an Achievement Center working with kids who struggle with behaviors, academics or social skills. I learned about the methods and goal of the program. Then I started to notice how much in common my son’s behavior was in line with kids who come to the center. It all clicked, and it took me seeing both sides--knowing my son and the information gained from working there-- to put it together. I brought our son in for the sensory motor and cognitive assessment and it showed that he'd been struggling with ADHD and ASD. I was shocked and encouraged at the same time because I finally had real answers. It all made sense. Finally!
Blessedly, my initially skeptical husband followed my lead. During the program, our son started showing empathy. Toward the end of the "boot camp for the brain" program, he stayed seated for meals. His became less argumentative, he simply became a happier kid! And he started reading above his grade level... simply because he enjoyed it! His progress astonished us. He was voted Assistant Patrol Leader by his boy scout troop, he earned a spot in his school’s spelling bee the following year and now asks to go to the library, which makes my heart soar. His maturity and self-confidence are up. His grades are way up. He makes an effort to keep friendships. It gives me goosebumps thinking how much this program creating permanent, lasting change has impacted our family and I talk about it any chance I get. God is so good!
he fact as to why Asperger syndrome occurs in the body of individuals is still unknown, however it has been mostly considered that it occurs because of inheritance i.e. from parents to child. This syndrome as of now is considered as a unique disorder, which is why number of people facing the syndrome is still unknown.
If an individual is diagnosed with syndrome then doctor shall begin with the treatment on the patient. But before beginning with it, he shall look out for his medical history to find if he has any allergy or disorder. People suffering from Asperger have low muscle tone or dyspraxia or also might go through the coordination issues which are important to be treated. But before beginning with the treatment, an individual should be tested for the same which includes conducting blood tests and X rays which will be helpful in determining the physical disorder in a person.
How can the syndrome be treated?
For individuals, who are not suffering with physical disorder, patient can consult a specialist in the field who is proficient of dealing with these disorders. Asperger treatment UK proceeds by strictly observing the progress and development in an individual. Herein the doctor may observe the child’s behavior, his speech or how he play which shall be evident on how is he progressing with the treatment. Doctor may also look for inputs from relatives or parents of the children to know what difference has been noticed in them after the treatment.
We have been on a 5 year journey of experimentation, failings, labels, and stereotypical comments.
She's "naughty, loud, weird"... "you need to get her checked out"..... "there is something wrong with her".... "have you considered testing?......."
Glasses prescribed, grommets inserted, hearing tested, IQ testing, and behavioral optometrist. Each specialist sending detailed reports on how to help her.
But still the label "naughty, misfit, failure, loud." were how people viewed her.
Well, we just know her as Jenna.
Finally we received a diagnosis of Autism this year.
Getting it wrong for the past 5 years I asked myself these questions:
Where does she fit on the spectrum?
What have I missed?
What treatment is needed?
What do I need to change?
Have I made the problem worse?
How do I shut up the skeptics?
How do I embrace her uniqueness?
Does she need "the label"?
Putting all the rules, diagnosis, stigma, and people's comment aside, I can come to a conclusion.
Jenna is Jenna and Jenna can be Jenna and no label will change that I love my Jenna.
She is unique, different and honesty will find it difficult to fit into cultural norms for a very long time.
That diagnosis of ASD can't change.
I can't change that my daughter can't read social cues correctly.
I can't change that creating friends will continue to be a challenge for her.
I can't even change that she is the most literal person I have ever met.
If I could make a wish, dream big for Jenna it would be very simple; I want people to value her, laugh with her, and embrace her uniqueness.
She has the potential to change the world. I just pray the world will take the time to see the greatness that is my 10-year-old ASD kid.
Hi there again!
It's Nick, the indie voice actor & marketing researcher, stand up comedian, and Autism advocate, who wrote a blog for this website back in January about his Asperger's being a positive thing (http://theautismsite.greatergood.com/clickToGive/aut/story/my-life-with-aspergers-syndrome212)
I thought it'd be awesome to do an update as to how I'm doing, well, I'm now applying to voice acting agencies here in home of England, and I managed to make a television appearance on a TV station here in the West Midlands of England called Big Centre TV! I ask if it was ok, and they agreed, that I could share with you the YouTube video of my appearance on there! The show I appeared is called 'SofaClub', I appeared on there to promote the indie game company I work for; MadSlug & their games that I have done voice acting for, and to do some of my impressions of characters from the TV comedy: Family Guy! I come into the video around 11:03 in case you're wondering. (https://www.youtube.com/watch?v=DheOLASnXsk)
I'm also due to appear at the NEC arena in Birmingham, England to do a Autism talk for an Autism support charity, and later on that same year at Aston Villa F.C's Football ground to talk for another Autism support charity, so I'm keeping busy!
And as for Stand Up Comedy and other stuff I do, I'm going by a stage name for those things, I combined my name with the name of one of my favourite classic rock/metal bands; Judas Priest, and came up with my stage name that I now use: Nicky Priest. Catchy, isn't it?
Anyway, that's an update from me after my last blog, and I hope that this one also shows that, again, nothing is impossible for people with Autistic Spectrum conditions.
Take care people. Peace out and rock 'n' roll! :D
My little Annabelle was diagnosed with High-Functioning Autism (HFA) a year ago. We thought she was just like other children entering stage terrible twos horrible three. She looks normal & her motor skill was ok so we assumed she was only delay in speech. We sent her to nursery when she was 2.5 years old, hope that she could pick up her speech & communication skills while mixing around. In fact, she didn't improve much and still shown temper tantrums, lack of eyes contact, couldn't focus during the class, only did what she likes at school.
A year later, I convinced my husband to consult specialist. Doctor explained all the symptoms and what treatment should be taken. She improves dramatically after attending occupational therapy & speech therapy for 3 months. She is now better in communication, express herself and pick up dual languages. Although she yet could control her emotion & fully sharing, might not be good story teller, not recognize words/ verbs, but at least she is willing to practice more & talks to us.
We're glad that she is doing so well, she improves bit by bit everyday. She loves drawing so much, with all the smiling faces, indicate everyone of us in the family and signed with her name on the top :)
My little Annabelle, let's us learn and grow with you together
There is definitely a lot more awareness regarding Autism now than when my son Matthew was a little boy. I remember a trip we took to Texas to visit family. We stayed at a Holiday Inn in Farmer's Branch. The restaurant area was right next to the swimming pool. There were kids laughing and playing and swimming and just being kids while we were eating breakfast. The stimulation was so much for my son that he really couldn't even eat....he just kept rocking back and forth and looking over at the swimming pool. We went down to the pool later and he was so happy. He couldn't talk and vocalized excitement and happiness in a different way......usually by flapping his hands and yelling. An employee of Holiday Inn came to tell me that "his" noise was bothering people in the restaurant. I said he was bothered by noises while trying to eat as well so they would have to "get over it" like he did. Anyway, I was extremely upset and after a few minutes, I did take my son out of the pool. The same lady came to apologize and said he didn't have to leave.......but we did anyway. My son is a 27 year old "non-verbal" man now and there is definitely more "awareness" -------hopefully with awareness comes understanding and acceptance.